Nationwide Children's Hospital Muscular Dystrophy Specialized Research Center | Family Day | July 19, 2025

Saturday, July 19, 2025, 9:00 AM - 2:00 PM,  Nationwide Children's Hospital Education Center

Non-Physician Attendance (1.50 hours)

Join Us for a Day of Learning, Discovery, and Connection

Families, caregivers, and patients affected by muscular dystrophy are invited to attend an informative half-day program focused on the latest advancements in research, therapies, and clinical trials. Hosted at Nationwide Children’s Hospital, this event will provide updates from leading experts on emerging treatments—including gene therapies, exon skipping, and what's new in steroid and other drugs—designed to improve care and outcomes for those living with muscular dystrophy.

In addition to engaging presentations, attendees will have the opportunity to connect with medical experts and explore the groundbreaking work of The Muscular Dystrophy Specialized Research Center. Complimentary breakfast, lunch, and optional tours of the research center will be provided.

Who Should Attend:

• Individuals diagnosed with muscular dystrophy.

• Patients, parents, caregivers and family members of children and young adults affected by muscular dystrophy.

• Anyone interested in learning more about research and treatment advances.

Location:

• Nationwide Children’s Hospital Education Center

• Stecker Auditorium

• 575 S. 18^th Street

• Columbus, OH 43205

Hosted Conference Parking:

• Complimentary parking is located in the Orange Parking Garage

• (Adjacent to the Outpatient Clinic – See map below)

• 555 S. 18th St., Columbus, OH.

• (Orange Garage Parking passes will be provided)

Registration Includes

• Instruction and interaction with medical experts

• Printed conference materials

• Breakfast Buffet and Light Lunch

• Complimentary childcare (ages 3-11) & Teen activities

• Complimentary parking

• Clinic tours

Optional Tours – The Muscular Dystrophy Specialized Research Center

• 12:45 PM

  The Muscular Dystrophy Specialized Research Center (MDSRC) is orchestrated by faculty of the Jerry R. Mendell, MD Center for Gene Therapy at Nationwide Children’s Hospital and The Ohio State University.  It is one of only six under the sponsorship of the National Institutes of Health, awarded for collaborative basic, translational, and clinical research.  The Center is dedicated to pursuing novel approaches to developing therapies for muscular dystrophies, collaborating amongst fellow clinicians and scientists, patient and family outreach, and training the next generation of muscular dystrophy leaders. 
  

• There is no charge to attend, but registration is required.

Steps to Create an Account for Registration

• Creating an account is a one-time step and allows us to track individual attendance, prepare collateral materials, and to ensure complete registration information.

• For required fields related to healthcare profession (e.g., Degree and Profession), please enter “NONE” or “OTHER” if they do not apply.

• Each attendee must register individually using their own account.

• A confirmation email will be sent to all registered participants

 

Questions:

For additional information or questions:

• Call (614)-355-0589

• Email [email protected]

Cancellation Policy

Cancellations received in writing no less than 14 days before the course will be refunded, less a 30% administrative fee if a program fee was incurred. No refunds will be made on cancellations received after that date. Please send cancellation requests to [email protected].

Nationwide Children's Hospital reserves the right to cancel or postpone this program if necessary; in the event of cancellation, course fees will be fully refunded. We are not responsible for other costs incurred such as non-refundable airline tickets or hotel penalties.

Accessibility Statement
Nationwide Children's Hospital is committed to ensuring that its programs, services, goods and facilities are accessible to individuals with disabilities as specified under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Amendments Act of 2008.  If you have needs that require special accommodations, including dietary concerns, please contact the CME Conference Coordinator.

The Nationwide Children's Hospital® adheres to ACCME Criteria, Standards and Policies regarding industry support of continuing medical education. Disclosure of faculty and their commercial relationships will be made prior to the activity.

Mitigation of Relevant Financial Relationships

Nationwide Children's Hospital adheres to the ACCME’s Standards for Integrity and Independence in Accredited Continuing Education. Any individuals in a position to control the content of a CE activity, including faculty, planners, reviewers or others are required to disclose all relevant financial relationships with ineligible entities (commercial interests). All relevant conflicts of interest have been mitigated prior to the commencement of the activity.