Rare Disease Day at Nationwide Children's 2022

More than 300 million people in the world are affected by a rare disease.

Rare is everywhere.

As a Rare Disease Center of Excellence, Nationwide Children’s is a trusted medical home where patients with rare disease and their families come to find answers.

Join us for the s 4th Annual Rare Disease Day at Nationwide Children's 
 to raise awareness of rare diseases and support our patients and families affected by them..

Agenda

Linking Patients, Families and Physicians: The DADA2 Experience

 Chip Chambers, MD

Assistant Professor of Surgery, Vanderbilt University
Founder, DADA2 Foundation

You will be Found: The Search of Answers in Rare Disease

Peter White, PhD
Senior Director, Institute for Genomic Medicine,
Nationwide Children’s’ Hospital

Supporting your Child Coping with a Rare Disease

Alana Goldstein-Leever, PsyD
Psychologist, Nationwide Children’s Hospital

Rare Disease Care in Public Health

Murugu Manickam, MD
Genomic Medicine, Nationwide Children’s Hospital
Ohio Rare Disease Advisory Council Member

Family Panel

Questions? E-mail us at [email protected]. 

Cancellation Policy

If you need to cancel, please let us know as soon as possible so we know who will attend the webinar.

No faculty are available for this activity at this time.