Rare Disease Day at Nationwide Children's 2022

More than 300 million people in the world are affected by a rare disease.

Rare is everywhere.

As a Rare Disease Center of Excellence, Nationwide Children’s is a trusted medical home where patients with rare disease and their families come to find answers.

Join us for the s 4th Annual Rare Disease Day at Nationwide Children's 
 to raise awareness of rare diseases and support our patients and families affected by them..

Agenda

Linking Patients, Families and Physicians: The DADA2 Experience

 Chip Chambers, MD

Assistant Professor of Surgery, Vanderbilt University
Founder, DADA2 Foundation

You will be Found: The Search of Answers in Rare Disease

Peter White, PhD
Senior Director, Institute for Genomic Medicine,
Nationwide Children’s’ Hospital

Supporting your Child Coping with a Rare Disease

Alana Goldstein-Leever, PsyD
Psychologist, Nationwide Children’s Hospital

Rare Disease Care in Public Health

Murugu Manickam, MD
Genomic Medicine, Nationwide Children’s Hospital
Ohio Rare Disease Advisory Council Member

Family Panel

Questions? E-mail us at [email protected]. 

Cancellation Policy

If you need to cancel, please let us know as soon as possible so we know who will attend the webinar.